ERT

We’re very excited to share that Sloan completed her first enzyme replacement therapy infusion (ERT)! It was a very long day for this first time to make sure there was no reaction, but our warrior slept through most of it (with the help of some Benadryl). They are back home to rest from an eventful few weeks.

Our family is forever grateful for the outpouring of love and support as we continue to ask for thoughts and prayers for the gene replacement therapy to be effective.